More Goslings & Creative Thinking
Spring Goslings - Wilsonville, Oregon - April 26, 2012
CK and I trying to bring some creative thinking to things with Mom. Still in the planning stages, but we have some ideas that we're going to look into to see how feasible they are.
Today at work I took a little break and sat by the stream that runs through the campus. Nearby were some more of the goslings we see each spring, I think there's almost a dozen of them around the campus. Goslings in spring are definitely a perk!
Small feathered beings
Carefully guarded over
By cautious mothers.
Eddies in the Dust of Rage
Broken Piano Foot - Our Basement, Portland, Oregon - June 2010
Today was another page in the Troubles of Mom, sadly. Still don't want to say much in such a public forum, but the end result is that I'm feeling angry and sad tonight. So angry that the poetry I come up with is something like this:
Anger.
Angry.
Angrier.
Rage.
sigh
I'm reminding of a song from Bruce Cockburn, "Pacing the Cage", which has the amazing lyrical image of "eddies in the dust of rage". The difficult waiting game, waiting out the rage, reminds me a lot of this song tonight.
And then on my commute home there was an enormous rainbow, clearly seen in a glorious arc across a gray, spring sky.
It is hard practice sitting between the simple joy of rainbows and unethical people hurting my Mom. Practicing with my own anger very certainly feels like all the training wheels are off.
And yet, there is this nagging commitment to poetry...
Waiting with Anger
Difficult
Is the
Practice
of patience.
Distilling
Anger,
Impatience,
Irritation,
Into the
Stillness
Of the
Heron fishing.
There's a video on YouTube of Bruce Cockburn performing "Pacing the Cage", check it out!
Other
Xenophobia is a great, big-points-in-Scrabble kind of word. Wictionary defines it thusly:
Noun
xenophobia (plural xenophobias)
- A fear of strangers or foreigners.
- A strong antipathy or aversion to strangers or foreigners.
The Seventh Grave Precept, one of the vows I received when I took refuge, provides us with clear direction about xenophobia:
Realize self and others as one. Do not elevate the self and blame others.
Mom & Mr. Murphy, January 2012
The past ten days have been a roller coaster, a Mom roller coaster. This time it is something entirely out of the realm of the usual conflicts and hurt between us. In some ways there's a rather painful familiarity to what's been happening, but for now I don't want to go into the details, although I will in time.
What I want to talk about is what happens when we do not realize the self and others as one. What happens and what we are capable of when we don't practice with the Seventh Grave Precept.
We truly see and hear about the consequences of seeing people as other every day. Wars, murder, sexual exploitation, ethnic violence, abuse, theft, and more all happen because one group of people sees another group as other and their xenophobia lets them justify all manners of horrifying behavior.
We also witness this when animals are treated as commodities to be tortured, killed, and consumed. We tell ourselves that animals don't feel the way we do, that their suffering isn't on par with ours so we find it acceptable to treat them horrifically. We justify laws that classify sentient beings as property and allow barbarous treatment of them to be classified as "animal agriculture".
The Seventh Grave Precept asks us to keep our hearts open to the compassion of the Buddhas. It tells us to never flinch away from taking responsibility for ourselves, never put ourselves above another being either by seeing them as other or through blaming them for our own poor choices. At every moment we look at another being knowing that they are absolutely the same, equal with ourselves.
The First Noble Truth reminds us that we all suffer. It is the human condition to suffer. In this, and in so many other ways, we're each of us exactly the same. We all long to be loved and seen for who we are. We fear the suffering of illness, injury, loss, and our inevitable deaths. Each and every moment we're all out there together with our worries, hopes, dreams, and desires.
The past 10 days have created a gulf between people who have tried, in their own flawed and human way, to love each other. There's been both discord and joy, misunderstanding and communion. There have been unexpected and grave illnesses. In the end my Mom was seen as other and experienced shocking treatment because of it.
It hurts a lot and I am mindful of an anger so keen that it leaves me feeling ashamed and overwhelmed.
In contrast to the negativity that comes from not practicing the Seventh Grave Precept, loving-kindness and compassion arise naturally. In response to the events of this past week I see the true compassion people have for one another. There have been so many people, some of them complete strangers, who've offered help, time, money, creative thinking, concern, and loving-kindness. People have been giving in so many unexpected ways. These kindnesses, both small and large, help me to remember to keep my heart open instead of closed in anger.
Moving Right Along
That's kind of what life does. When we're little it feels like it moves intolerable slow, as we age we find ourselves looking up, blinking in astonishment at how quickly things speed by.
Case in point. Here it is November, nearly middle of. Gracious!
Work remains very busy. I've come to accept that the crazy busy feeling at first wasn't the "ramp up" period of getting used to a new job, new team, etc. My team just seems to run on "damn busy" all the time and I'm trying to find peace with the fact that I end each week just worn out and feeling like I haven't accomplished nearly enough.
This past week I received a very nice compliment from one of the project managers. I'd run a meeting to review and validate user acceptance testing. It was a busy 90 minutes of keeping client testers on task and keeping our developer from feeling overwhelmed and picked apart. Later that day the project manager made a point to tell me how impressed he is with the work I put into making this project run. He went further to say that he felt he could really learn from the way I run my meetings and projects.
I'm trying to just let that one sit and feel good about it. I feel like I'm behind on all the tasks for that given project, so it would be far to easy to pick apart that compliment until there's nothing left but my task list. Instead I'm just reminding myself that I am actually very good at what I do and that people both see and respect it.
Mom... I haven't seen her since this summer. I've spoken to her several times, but I can't quite get enough energy together to see her in person. It is a combination of the fact that spending time with her literally eats away one of my precious weekend days, complete with a bunch more driving, and feeling the hurt of how she treated me.
We got into something of an argument on Monday night. I won't go into the details, but it mostly all got hung up on how angrily she meets my setting boundaries. When I fail to respond how she wants me to, she lashes out at me and at herself. I'm still growing the skill of setting a boundary and not rising to the bait when she responds negatively. It is hard practice and somehow seeing her in person seems like just one stone too many right now.
Her health remains precarious. She has ulcers that are bleeding and she's receiving transfusions about every 6 weeks. He husband's health is failing rapidly and she feels alienated by his family, like they don't trust her. It is hard and I feel so very sad for her suffering.
On my health front things are well. I've lost 10 pounds and my cholesterol isn't the 219 it tested at at the employee health fair, but a far happier 178. I've been going to the aqua power class on Saturday mornings and trying to go to a Zumba class offered at the gym at work. Being in the water on Saturday really helps a lot. Zumba really feels out of my comfort zone, I generally just try to keep moving and not crash into anyone else, but the group of women who go are generally encouraging and supporting, which helps.
Even Ground
As of yesterday my Mom is speaking to me again. We chatted on the phone for a little while so I could get an update on the bleeding ulcers she's suffering from again. She brought up the blog to say that she felt overwhelmed reading it and just hopes that I can forgive her.
I avoided talking about her choice to live out in Corbett. I'm still so sad and angry about this choice, but I'm trying to at least interact from a place of non-judging. As much as it hurts to watch her make a choice that hurts her health, she is going to make those choices regardless of what I want or need. It is hard, but worthy Practice.
The thing she's missing is that I don't hate her, don't hold a grudge against her. I just ache to see her suffer and know that she was so hurt in her own childhood. I'm reminded of a talk Chozen Bays Roshi recorded on forgiveness of the abusers she interviews after examining hurt children -- that often these people are just abused children who grew up without ever having their abuse acknowledged, never treated, never healed.
That's my Mom - an adult who inside is an abused child who was never held in compassion. It helps me when trying to stay on even ground with her, stay in non-judgement. It also helps me be resolved to keep going to therapy even when some of those sessions are profoundly triggering and painful.
I have been so deeply touched by the thoughtful, sharing, compassionate and supportive messages I've received here and in person. Even today at Vida Vegan Con someone made a point to come up to ask me how my Mom was doing and how I was. Here was this lovely woman and she took a moment to tell me she's been reading this blog and thinking kind thoughts toward us. I feel so much gratitude that my fears around opening up have been meet with such loving-kindness.
I started talking openly and honestly about my recovery from trauma because there is a chance another person might be helped by it. Often I post stuff and I almost forget that people are out there reading it. When people reach out to me because of something I've written I am continually touched to learn that someone felt better for reading something I write. I'm also just humbled by the people that come to me to share their own experiences and offer their support.
Tomorrow will be my birthday, I will be 42, and on some level it feels odd to not be planning some party. I'd intended to, but with all the upset around Mom, my busy schedule at work, and getting ready to speak at Vida Vegan Con, there just wasn't time. I unfortunately forgot that DW made extra effort to take tomorrow off of work to go to the event I'd intended to plan, but we're going to make a point to spend some time together tomorrow afternoon. That bit of forgetfulness aside, it feels good to be speaking to Mom again and spending the weekend surrounded by people who are writing and working toward a more compassionate world.
Poof
Last Saturday our plans to sleep until noon to recover from all the sleep lost during OSCON were dashed by an early morning call from my Mom, phoning from ER. She'd spent much of the night with terrible chest pains and her husband had taken her into the closest hospital. By Saturday afternoon she was back at the hospital associated with her health care group and we went up to see her.
Here's where it goes weird.
Through some miscommunication my Mom believed she had been given a firm diagnosis of stomach cancer. That was back in February. I assumed that they'd done a scope, some blood work, and all those usual things to diagnose something like that. But they hadn't.
On Sunday morning they performed the scope and saw some spots that looked like ulcers that had likely been bleeding. These were cauterized and a tissue sample was taken for biopsy. On Monday some abdominal and chest x-rays were taken and nothing suspicious was found. We're still waiting to hear the results of the biopsy, but as of this moment it appears that Mom never had cancer.
Mom is furious that she was lied to. No mention of a "diagnosis" from a doctor appears in her charts anywhere; Mom sees this as a conspiracy and is certain records have been deleted. On the advice of her naturopath I've mentioned that she should make sure that all her records, even things marked as "sensitive" be evaluated. Mom is more concerned about having to tell people she was wrong about having cancer than she is happy to be freed of this burden.
CK and I believe that there was very possibly not a firm diagnosis. Mom was referred to an oncologist, but never went. She also had been told that it would be 8 weeks to get her in for the stomach scope and possible biopsy. She also never went. We feel that there probably was the suggestion that the digestive distress she'd been experiencing could be a recurrence of stomach cancer. Upon hearing that Mom went into her consistent behavior of reacting from fear and impatience, deciding that she did have cancer.
After a second Sunday visit CK said to me in the car on the way home, "That's what you grew up with?!"
I am first and foremost thrilled. On the other hand I'm furious with the way Mom spins stuff. I'm frustrated with her continual impatience and her drive to try and control everyone else while refusing to take care of herself. In trying to just offer sympathy at listening to her irritation I've been accused of belittling her.
Today we had a long phone conversation and she was much more rational to talk with. When she went off about her husband not taking care of himself I told her to let it go and take care of herself instead. She doesn't like taking care of herself and would prefer to think she's in control of everyone else so she doesn't have to think about her own needs. She also prefers to let other people take care of her and angry when they don't "do it right".
In a big moment for me setting boundaries as to what is acceptable I asked her to stop sharing a childhood story because for me it is a very painful, traumatizing memory. She hurt at hearing that this incident causes me nightmares to this day but wasn't defensive. She agreed to never talk about it again and made additional overtures in accepting that many times she did not make the best decisions for my well being.
All this and an incredibly intense EMDR session yesterday. Last night's sleep was frustrated by nightmares. CK reminded me again this morning that I need to "give in" and take Xanex when that happens. I'm about to head off to see my acupuncturist and hopefully that will settle some of this energy. It has been a really long, exhausting week and I'm feeling pretty worn out from the intensity of it.
A Bitterness
Mom's back in town and I took her to see NEM on Monday. She was in really poor shape. She talked about her disappointment at not feeling better and the expectations she'd held close that the Chinese herbs and acupuncture would be more significantly healing. There is also the resentment she feels toward her husband and the motor home trip they took recently that should have been restful and connecting, but wasn't. She talks sadly about not having the energy to be a better mother to me and says she means in the present. A not insignificant part of me believes she's wishing she could affect the past by suddenly improving now.
I shared with her what my Zen teachers offer - that clinging to those expectations, even having them in the first place, leads to suffering. My Mom and her expectations, and the suffering of not having them met underlies so many of the selfish decisions she made in my childhood. She wasn't overtly hostile to this information, just unable to really hold onto the idea of trying to not have expectations.
When I see Mom like this, in terrible physical and emotional pain and so clearly suffering, it is difficult. I feel deep sympathy and compassion for her, I try not to let it slip into pity. I feel anger at her all in the same moment as the love and concern. I hear her regrets, her bitterness, her disappointment and know it is the same thing I've been hearing my whole life. It is painful and I struggle to accept, without guilt and shame, that when she is gone I will feel tremendous relief.
I've been mulling one of Mary Oliver's powerful poems. So many of them capture practice, nature and life so well that I just sink into the words. A handful of her poems cut right to the core of suffering and seem to haunt me. One of her poems, A Bitterness, has been resonating with me a lot recently around what I feel about my Mom and the way I see her many cancers as some kind of physical manifestation of all the anger, resentment and bitterness she's held close to her heart during my life.
A Bitterness
by Mary OliverI believe you did not have a happy life.
I believe you were cheated.
I believe your best friends were loneliness and misery,
I believe your busiest enemies were anger and depression.
I believe joy was a game you could never play without stumbling.
I believe comfort, though you craved it, was forever a stranger.
I believe music had to be melancholy or not at all.
I believe no trinket, no precious metal, shone so bright as
your bitterness.
I believe you lay down at last in your coffin none the wiser
and unassuaged.
Oh, cold and dreamless under the wild, amoral, reckless, peaceful
flowers of the hillsides.
Thinking About AH in San Francisco
I've been.... Well, awfully busy for someone without a job. Let's see, I've been:
Taking Mom to see the naturopath/Chinese medicine doctor, plus errands, once a week for a few weeks. For those in the PDX Metro area that's from North Portland to Gresham to Lair Hill to Gresham to North Portland. For those for whom that makes no sense, just be assured that it is a lot of driving around. These days exhaust me physically and emotionally, often well into the following day.
I've been working with my Zen community to address the pain trying to practice with them as a vegan has been for CK and I. Trying to improve things for us all. This too is uncomfortable and painful. I feel singled out around being a vegan and experiencing this now reminds me that this sensation was one associated as dangerous as a child. It is very hard work to try and learn that being singled out can be an expression of loving-kindness.
I also have been making art and trying to work in the garden. These things have been really good.
CK and I also started making plans for our wedding ceremony. This is filled with all kinds of exciting emotions, mostly lovely.
Then CK got sick. Then I got it. Then we drove to L.A. to see Peter Gabriel perform, I was still quite sick. A day there and then driving up to San Francisco with a friend while CK took a flight back home to get to work. I was still sick and slept much of the drive up I5. The drive through the mountains, away from the Interstate was beautiful.
It was outside of Gilroy, CA, when I got the news that AH had died uxpectedly.
And it hit me in the chest, between the heart and the throat chakras. Hard, cold, dark, painful. Today's massage tried to work some of it loose.
Where I got the news the cellular signal wasn't great and CK was still in the air, flying home. Besides, I felt like I wanted to be stopped, not driving, somewhere safe to try and convey the news. I didn't phone her right away, waiting until I was parked outside my friends' house in San Francisco, alone to phone her. Ultimately she felt disappointed I hadn't left a message earlier. I just felt so stunned at the moment I got the news, I just froze.
I also started to think of my mother and all the challenges to her life I have witnessed, including those she dangers she chose. These memories found me as I drove alone out of Sunnyvale up I280 after dropping my friend off for a short visit there.
So there I was, in San Francisco, staying with one of my very closest friends, on vacation. There's really nothing could be solved by rushing home and KK, the friend I'm traveling has plans she is looking forward to as well. Heck, I have plans and many friends who enjoy my company who have made plans to spend time with me.
No amount of DO-ing will fix anything at all. There is this dichotomy of new pain, old pain, feelings of inadequacy, and a holiday in a city I really love to visit with people who love me. Just staying put, letting life tick on forward. Trying to let myself just enjoy the company in the present moment, the present place.
In the mornings there I woke to the constancy of traffic noise, the busyness of San Francisco. I'd lay in my friend's office with my mind thinking about AH, my Mother and CK. In and out, back and forth. Having been coughing hard for nearly a week I found it even harder to settle my mind by watching the breath because of the painful way my breath moved in my body.
It was a quieter visit than many. I was still coughing badly and conscious of the sorrow I felt. I didn't feel capable of rushing. I mostly rested and relaxed in the mornings. A bit later in the day my friend and I'd go out. One day to SFMOMA and the second afternoon he drove us across the bay to Berkeley. Each day was quieter and more reflective.
It was in the glorious, golden light of evening that streamed across Berkeley that I was just struck at how happy I am - how lucky, how fortunate.
Right there with that simple joy I felt welling up in me was this hard, sharp point of AH's death. My mind returning again and again to her smile, sometimes so sly, and so often gleaming in her eyes with mischievousness. Her hugs, the warmth I felt in each and every one of them. Her curiosity about life which makes her death so hard to process. I nearly felt silly, but I kept thinking how I'll miss her wonderful sweaters & scarves and how seeing her in them often brought a lightness to my heart when it felt heavy.
I commented to SJ as we walked that there is this strangeness in practice where we learn to accept that we feel all of these things at the same time. If we are present to everything there in front of us, it is all in there together. The awful and the glorious.
There is the unspeakable grief that sticks in the space between my heart and throat chakras, stealing my voice, incomprehensibly intertwined with a gratitude & happiness that is too precious for words. All there, all together. I noted that I could just sit down with a thump into that dark sorrow, or rush back pointlessly to Portland, but if I did so I'd be turning my back on the dear friend with me that moment and the incredible beauty surrounding us.
So I was simply happy strolling across Berkeley in the evening light. Choosing that brightness and wrapping it around the jagged edges. There's nothing that makes that sharpness go away, but there is some cushion between the points in allowing myself to be present to the joy that exists simultaneously alongside them. I'm grateful to have so many loving people in my life, so many safe havens where no one minds that I go from tears to laughter within moments.
Good-by, AH, I will miss you.
May we all be at ease.
The Opposite of My Mother
Mom was having a bad day yesterday. She tried phoning the house at 10:30 to say I shouldn't come out, but I'd been gone all morning and was already headed out the Gresham. She didn't answer the door right away and I could hear her dog whining a little at the door. When she finally did I could tell immediately she wasn't alright. Her blood sugar was a little low and she was very nauseated, immediately lying down on the sofa with the crackers she was trying to eat.
I'd picked up a gluten, soy & sugar free muffin from Sweetpea for her as part of my morning errands and put it on a plate for her. As she started to try and eat that I took out her trash and put her outgoing mail in the drop. I went up to the office for her apartment complex and had them make a key for me. I also had them put my contact information down for emergencies since Mom's husband is sometimes up on Larch Mountain and could miss a call quite easily.
When I got back to the apartment she'd managed to eat the whole muffin and felt a little better for it. Mom hasn't been very forthcoming with details, so I tried to get a few from her about her health. Aside from just wanting to have a more complete picture of what is going on with her health, CK and I are hoping that an early October date for our wedding will be soon enough for her to be there.
Mom ended up saying something about it not mattering. She is so happy for CK & I and she loves CK. She doesn't mind it if she has to miss our wedding. Mom ended this exchange with the comment that if she had to feel the way she was feeling at that moment for many months she'd rather just die now.
And it hurt. It really hurt. She totally missed the point that maybe we were trying to have a wedding when she was well enough to be there for my sake, for our sake. That we wanted her to be there. I left pretty soon after this exchange to let her get some rest.
Later in the day she phoned me and we talked for a while. I said I wanted her to make sure I could speak with her doctors. Ultimately what I found out was that after being informed about the cancer Mom has cut off most of her contact with the doctors. She was referred to an oncologist, but felt like she was being pressured to sign up for tests, chemotherapy and all the things she doesn't want to go through. She hasn't done much of anything since, falling back into a typical behavior for her - throwing up her hands and refusing to deal with the situation.
I ended up talking her through some things. EB had advised me that Mom is entitled to ask for a hospice team and CK noted that Mom should be referred to a palliative care specialist. She's been given a very serious diagnosis and she shouldn't feel that she has to choose "treatment". I told her on Thursday we could look at some things at Kaiser. She also agreed to try acupuncture if I would help her find someone.
Once again I found myself stepping into the role of the "grown up" in dealing with my Mother. I've been the adult in our relationship most of my life. Even now we are each falling into the roles we know best.
I feel pretty beat up today. It hurts seeing her suffer, the familiarity of it has never lessened the pain of it. The inevitability of eventual death for everyone doesn't in anyway soften the blow. Her behaving exactly as I expect her to, exactly as she's always done doesn't make it any less painful. There's a part of me that just wants to scream at her and ask why she cannot be the grown up at least once in my life.
But she can't be the adult. If she couldn't at the rare times she was healthy, to expect her to do it when she is dying isn't very reasonable. As painful as it is for me to have to once again take care of things, especially the arrangements for her approaching decline & death, it feels wrong to mimic her. I really would rather throw up my hands, claim despair and not deal with all of this, but I have always done best in life when I choose to behave the opposite of my Mother.
The Weight of Her Regret
It has really hit me the past couple of weeks just how ill my Mom is. It wasn't that I was truly in denial, but just a real depth of grief that I've been feeling. I think the bittersweet energy of getting ready for a trip to the Oregon coast this past weekend, the sense of urgency around taking trips with her while she can still enjoy them is part of it. Another was overhearing her say to someone at a gallery that she was dying.
What occurred to me is that I've never heard my Mom make that kind of admission. She's always met cancer, or her other ills, head on and ready for a fight. Her response has always been that she's going to beat this latest assault to her body. Now she doesn't say that, she says that she is dying. She's does offer that she believes in miracles, so who knows what could happen, but that is usually an aside to saying she's finally, right now, alright with dying.
The cancer, somewhat at the top of her stomach, is late into Stage 2. This usually means it has spread to multiple layers of the stomach and/or the lymph nodes. It is causing her discomfort, nausea, and vomiting, particularly if she eats things that are difficult for the stomach to process. Because of these problems she's fighting some malnourishment already.
Last week CK and I picked up Mom and took her to a small place south of Yachats. She had been a little worried at first about what she'd eat, but finally decided she was up for trying new things. I spent much of last week cooking several dishes that were vegan and all soy-free except for the chick pea salad, which had Vegenaise in it. Mom has at times been a little sensitive to soy, although it has been hard to pin down.
We noticed she did pretty well with small meals. I made her a fruit smoothie each morning and added some brown rice protein. She enjoyed our vegan, some raw, dishes very much and didn't seem to get sick from eating them. She did end up eating too much of the lentil/walnut loaf with mashed potatoes & gravy, this made her somewhat nauseated, but she was alright after laying down to rest for a while.
One afternoon we ate out and she ordered a hamburger with bacon and cheese. We didn't say anything, at this juncture it seems rather pointless to bug her. After, back at the inn, CK and I went out onto the rocky shore and Mom lay down. She told us later that this overly indulgent meal ended up making her really nauseated and she eventually vomited. I was relieved when later that day she was able to eat and enjoy a tostada with homemade, refried black beans on a baked corn tortilla.
There she was, very literally made ill by her bad choice and regretting it. I would later point out, after she was feeling better and able to hear it, that the animal proteins and fats are probably more difficult for her stomach to deal with, especially in such a large serving. I don't think a vegan diet will save my Mom's life at all, but I did see in the long weekend that the smaller, vegan meals we're easier on her body.
I later recalled listening to her order that hamburger, hearing the mix of defiance and guilt in her voice. She knew she was doing the wrong thing for her body, but she didn't want to feel like she was somehow denying herself. My Mom's choices so often seem like a child is making them, a child who wants to be indulged and doesn't give a damn about any potential consequences. I've watched this pattern with her again and again, in so many different variations.
Like so many things it seems pointless, cruel even, to shine a light too brightly on her continually making poor choices. Once or twice something she said triggered a painful memory and I felt angry at her for trying to rewrite events in my life, trying to cast herself in a more favorable light. It would strike me how childish the behavior was in many ways, like the bad choices about food, and how sad. The anger would die down pretty quickly I noticed, leaving behind layers and layers of sadness.
I'm sad my Mom is dying. I'll think about something, like what she's doing for Christmas, and it will occur to me that she could be gone before then. I'm sad for the anger I still feel over many of the selfish, mindless choices she's made, but it seems so trivial to bring them up when I watch her and see the layers of pain she's dealing with. I'm sad for all the poor choices she's made and the many ways those choices have left her regretful and unhappy; I can see the weight of the unhappiness and regret on her.