Mom’s Choice
I spent the 5th with Mom, her birthday. We didn't really do anything special at all, I just went on her shopping errands with her. Mom's always been a shopper, poking around looking at things is a fun day for her. I find it generally fatiguing, although we agree on thrift store shopping and both enjoy it.
I was feeling very anxious and down about things having only spoken with her for a few minutes when she told me about the cancer. Actually talking with her in person helped a lot to alleviate some of those uncomfortable feelings. I think seeing that she felt resolved and at peace with things, at least she did on Friday, was reassuring in a lot of ways.
Chemotherapy might be an option, as might surgery. Radiation isn't really an option since she's had it so much. What Mom really wants is to receive palliative care, just medication for pain and anxiety rather than trying to 'cure' the cancer. She also is interested in alternative medicine. She really doesn't want to go through any treatments to cure cancer again.
It is so sad. I do feel anger at this one last failure of my Mom's health. She corrected my belief on when she first had cancer, it was 1973 and I was four years old (I'd thought I was closer to 9 the first time). For 36 years I've watched my Mom fight cancer, have some time of health, fight heart disease, diabetes, and increasingly debilitating arthritis. It has been exhausting for both of us in its own way.
I don't blame her, not at all. Having watched what those cures have done to her over the years I think she's making a wise decision. Her health isn't that great to begin with, her heart is very weak, and she wants to really be able to enjoy what she can of the time she has remaining to her. I honestly think she's making the best decision.
We're taking her to the coast for a few days later this month. I'm really grateful I've got more time available to do things with her and have been trying to check in by phone with her more often.
We have some squirrel-gifted daffodils blooming in the front yard, but I'm loathe to pick them as they make the yard look so cheerful. Instead I bought some flowers - stock and daffodils. Purple and vivid yellow adorning the mantle. Today's poem is a quick haiku inspired by them.
Daffodils open.
Spring flashes a wide smile from
Bright yellow faces.
Mom News & Poetry
My Mom called today to tell me I was off the hook for taking her to a 5PM doctor's appointment. I was relieved, it would have me driving from Gresham to rather near my house and back to Gresham, during some of the worst traffic. I didn't begrudge taking her at all and was glad I could, but I certainly was relieved to hear her doctor was needed in surgery.
Then she told me that the doctor was an oncologist who has treated her in the past.
It would seem that the stomach cancer she bested oh so many years ago is back. Or just a new cancer in the stomach. Either way, it is Very Bad News.
She's known for a few weeks now, from back when she was in the hospital the last time. They told her there. It had show up in her T cell counts, they'd looked there with some of the blood work they were doing.
She said she couldn't face telling anyone. She's only told her husband last week. I felt some anger that her great idea for telling me in person, because she'd wanted to avoid telling me over the phone, was to do so while on the way to an appointment with the oncologist. I'm glad she told me over the phone. I'm just glad she finally told me.
I've lived well over half my life, perhaps closer to two-thirds of my life under the shadow of my Mother's possible death. As a child it felt like icy darkness, dread of being forced to live the rest of my childhood with my aunt or my grandmother. I spent long hours sitting in waiting rooms, reading while she would get chemotherapy.
Cervical. Skin. Stomach. Breast cancer, twice. Who knows, there may be another cancer in there I'm not recalling right now. Additional problems too, angina & other heart problems, gall bladder, infections, cellulitis, and the list could go on. In and out of doctor's offices, clinics, hospitals. Always accompanied with dread.
The news hurt. It always hurts to hear she is sick, possibly hospital bound again. She doesn't want to go through another major surgery. I don't blame her. She's had radiation so many times they cannot really fall back to that. I don't recall her mentioning chemo. She said they've prescribed a lot of pain medication.
I remembered the last time she was sick and I mentioned it to Hogen. He reminded me that I know how to face this. I've had an enormous amount of practice facing the grave health of my Mother. How to keep moving forward in the face of fear.
So I moved forward. Running a number of errands we normally would have to cram into a weekend. Tasks made easier since I wasn't at work any more. The fear subsided. In it's place remains an ache, anticipatory grief for the loss that may possibly come sooner than anyone would like. Grief for myself, for bearing the burden of her fear of death throughout so much of my life. Deep grief for all the loss she's experienced, a whole lifetime of loss and very little joy.
Unsurprisingly the news has deeply touched my offering in the Poetry Challenge.
The Loss That Comes
The fear of
My Mother’s Death
Has shadowed
Most of my life.
I’ve grown older
Immersed within it.I easily touch
My child-self’s
Icy, dark fear of
Being left alone.I feel the grasping after
What was lost.
What never was.
What will never be.I become aware of myself
Endlessly spinning around
The same mythology of
Fairness.
Justice.There is a certainty we
Wish to avoid.We are dying.
From moment to moment.
First breath to
Last breath.
Every last
One of us.The news comes
And the shock is
Still as startling and
Painful as it always is.
It subsides more
Quickly than when
I was a child.
Left behind is a
Dull, hollow ache of
Anticipatory grief
For the loss that comes.
Mom’s Pastor, Marriage Rights, and I
Mom was in and now back out of the hospital again over the weekend. Has made for some rather up & down energy for me. I reminded myself, as Hogen has so often reminded me, that at least this is a stress I'm rather adept at dealing with. Mom's been sick that majority of my life. I've been to so many doctor's appointments and into so many hospitals over the years. It never is comfortable, but the knot of anxiety in my throat is familiar, known.
Sunday night we went up to visit her after having been out at Great Vow all day for service, a Jukai ceremony, lunch, and CK met with DT. It was a very long day and we were a bit tired up at the hospital. Mom's pastor and his wife showed up to visit her. I am uncomfortable around him, perhaps even more so these days. He represents a stress that is more new, but it brings up old, familiar pain.
During Mom's wedding ceremony a few years ago her pastor made a point to include his opinion on marriage. As we all stood there, I was Mom's maid of honor, her pastor went on about the importance of marriage being between a man and a woman. It brought pain to the entire day for me.
Right now with the trail of Proposition 8 in California I feel even more sensitive to this issue. Sitting there on Sunday with the person I love, but am constitutionally barred from marrying, I was aware of anger and dislike arising. These stress emotions take me right back to childhood feelings of not fitting in, not being wanted. Old stress, new triggers.
When I am around this man I try to stay polite, not giving rise to the anger I feel around this man, just watching it inside of me. I also try to focus on the compassion and concern he shows my Mom. In some ways it is more confounding and painful that this compassionate, loving person is so wrapped up in his own fear and judgment that he vehemently denies CK and I the right to the same benefits he enjoys.
I don't linger too long in my Mom's decision to stay with this congregation despite knowing how they feel about me and my partner. I know she's made a point to tell many people, including the pastor, that they are being narrow-minded, yet still some hurt arises for me that she continues to share spiritual practice with these people. I can feel the angry hurt of a child who feels abandoned, betrayed arise in this.
These feelings make this one of those times when I recognize that the most important thing I can do is Metta practice, to offer loving-kindness to myself and to CK. If all I can do is be polite to him and mindful of the need to offer love to the hurt I feel, then that is OK. When it doesn't hurt quite as keenly I can even try to offer him loving-kindness in hopes that if he is freed from his fear he won't feel the need to judge and deny couples like CK & I.
And 2010 Is Off!
It has been a very busy several days. I've been working on a few more cards (ATCs) and will post pictures soon. I realize a recap is going to make me feel tired...
Last Friday my leg tattoo was finished in 2.5 hours of intensity. It still aches and throbs a bit today. I did yoga at home and it felt alright, kneeling down or being in child's pose is still pretty uncomfortable and I won't be doing meditation using my kneeling bench anytime soon! It is beautiful, striking, and impressive. And I can't wait until summer!
On Friday Mom was moved into the regular cardiovascular unit and out of the ICU. What a relief! She was doing much better by the time we got there after having a bite to eat. We stayed and talked for a while then came home to get some rest.
Saturday CK was up very early to help our Zen community set up the 12-Hour Chant for Peace event we were organizing! She suggested that I sleep in to get some rest after the body-stress of the tattoo. This also meant I could bring goodies from Sweetpea Baking Company when I came later in the morning!
It was a very powerful event. Chanting, walking & chanting, and the space of being with community in the room where AM had set up snacks and chili to sustain every one's practice. I got to chant in Latin, which reminded of how much I love chanting in Latin!
In the midst of this amazing space of compassion, peace, love and community I got the news that Mom was discharged from the hospital! They really felt she had been so sick (Norovirus) on the cruise last month that she hadn't been able to keep enough of her heart medications in her. This caused her congestive heart failure to flare up very badly, but it was quickly brought back under control.
I stayed and chanted more after this news. It was just such a good space to have that news and just be able to be grateful for my Mom. I spend so much time having to really be mindful and practice when I'm with her, not to mention be aware of my painful, conflicted emotions at times. What a double-relief to just be present to happiness that she could go home.
Sunday CK went back to Sweetpea Baking Company for a waffle-tastic brunch. Back at the house she worked and I worked on the art projects. In the afternoon we met with a handful of friends in the Portland technology community and got the Open Source Bridge conference rolling for 2010. 3 hours later and we've got things off to a start. I feel pretty excited to get to be a part of this.
Dinner, laundry, zazen and talking to Mom. We had an interesting encounter with a woman at New Season's while picking up a couple of things after the meeting, but that actually deserves a separate post. Suddenly it was time for bed, the weekend had flown by.
Monday I took the car in for general maintenance and worked on some on-g0ing projects. We have an upgrade going in the beginning on next month so I have additional meetings to discuss release plans and things like that. Some other rather interesting things happened too, but they need time to percolate before I write about them.
Suddenly it is Tuesday night. It felt good doing yoga at home tonight. Sun salutations, some core muscle strengtheners, and some twists. Felts some shifts while doing it and since. I made a marvelous bean and winter veggie stew tonight. Once again in a massive amount. I must have been a tenzo in a former life!
Mom
My Mom is in the hospital again. The Cardiovascular Intensive Care Unit, or CVICU, to be exact. Her congestive heart failure is acting up again, she's gained nearly 20 pounds of fluid in 10 days, she's been having chest pains, they're checking to see if she's had a mild heart attack, and they may be doing an angiogram tomorrow or Saturday.
For close to three-quarters of my life I've lived with the fear of her death. Cancer, repeatedly, diabetes, pneumonia, and heart problems. On my maternal side most of the women have had heart problems. That I've avoided them speaks strongly to how much of that risk is lifestyle.
It was an upsetting call. The shock of her being in the hospital is not the hard part anymore. As I was trying to talk to her they were attempting to do a blood draw from her hand. After many rounds of chemotherapy and IVs my Mom's veins are pretty shot. Combined with her arthritis and fibromyalgia it means that the blood draw, which apparently entirely missed the vein the first attempt, was very painful. Hearing my Mom crying out in pain left me feeling like a small, helpless child.
Once again we weren't at zazen, instead we had Vietnamese food and went up to the hospital. We sat and chatted with her until nearly 10pm and she seemed very relieved & pleased we had come. He husband wasn't there tonight, something that prompted a long discussion between CK and I about how we would handle things if one of us were in the hospital.
I'm struck by my Mom's unhappiness and unhealthiness. I cannot recall my Mom being content, being happy. Maybe moments, but the discontent is always close at hand. I find it terribly sad sitting with her now, seeing how unhappy she's been her whole life.
I hope she improves. I hope in some way I can do my part to maintain this relationship we have. In the short run - I hope we can take her to the beach for the weekend in March for her birthday. Maybe it will be another small pocket of happiness and contentment for her.
Unexpected Remorse
My relationship with my Mom has changed a lot. I didn't want to cut her off entirely, but at times when I'm processing some of the events from my childhood it makes it hard to be around her. Her health has been poor pretty much my whole life and drives so much of her constant state of anxiety & irritation that I make a conscious decision not to confront her about the past. For the same reason I try to nurture the connection between us, knowing how painful for her it would be if I stopped communicating.
To me it has felt the more compassionate choice for both of us to find a way to be present to her while taking care of my boundaries and needs. When angry, frustrated and hurt I try to do Loving-Kindness practice for myself and not feel too guilty for not seeing or talking to her. Hogen suggested that I ignore her behavior when it is hurtful, not compassionate and really make a point to give attention to her when I recognize behavior I know is healthy.
I have worked to accept that I cannot change my Mom or expect her to learn or change. I do have control over the way I learn from my past and how I choose to react to it. I am the one who is in the present moment and I can respond to that. That is how I face that my Mom has consistently minimized, re-framed, and passed off all responsibility for the actions she chose during my childhood.
Until yesterday.
Yesterday my Mom actually admitted that while she thought sometimes she was making a good decision for me, she knew she wasn't. She also said she knew at times she wasn't doing the right thing. Mom particularly noted that she feels remorse for forcing me to respect my aunt and my grandmother, punishing me when I questioned that respect.
For all the present-moment-wasting times I've played out conversations in my head with her she never once admits responsibility. It is so entirely unexpected. I was honestly stunned and just tried to stay open, neutral and present to her when she was talking. Oh, that and safely navigate the car in ugly, suburban traffic.
CK asked me if I acknowledged her for telling me all this, for taking responsibility. We both went back to Hogen's advice. I said I don't think I did, I was too surprised by it. I'm trying to come up with a way to make sure I do bring some mindful appreciation to her action.
I'm still rather stunned by this. I've played out conversations in my head with my Mom so many times. Conversations with people is one of the things my brain does a great deal of the time when I'm avoiding the present moment.
These imaginary conversations have often been painful, sometimes angry, but never has she taken responsibility. I never practiced my response for that in my head.
Craving Distraction
This afternoon I dropped CK off at Great Vow for the Beginner's Mind retreat. The others held in spring and summer fell on weekends that weren't at all possible for her to go (one of which we were in Hawaii) and she must go this weekend if she is to take the first five precepts on Thursday. She has really wanted to take these first vows when I will be taking my 16 vows. Despite it still not being a great weekend, what with her family coming next week for the ceremony, she's there and I am home craving distraction.
That makes this "Fun with the 5th Precept" weekend. How many ways can I watch the desire for distraction arise and how many times will I catch myself in the midst of distraction.
I already ate too much for dinner, have checked my email a handful of times, watched Ken Burns on the Colbert Report, tried to watch episodes of Last Chance to See (damn you, BBC and your non-working players), and even have cued up a movie I've enjoyed in the past (Cold Comfort Farm) on Hulu. I've heaved huge sighs, talked to the cats and am curled up in bed, wearing the sweatshirt she had on earlier today.
I feel apathetic about cooking for the vegan Fakin' Fest tomorrow, uninspired to work on the house for the impending family arrival (regardless of how anxious I am about their coming) and unmotivated to write (tonight's blog bright you to by Vriya & Tapas). Oh yes, and silly, I feel very silly because I know she's at Great Vow, retreats are a core element of Zen practice, she's just fine, and I wholeheartedly support her practice. I am still aching a little, chafed from last night's raw emotions, and I'd just like to curl up with her.
I also feel guilty for telling my Mom I could only come out for a few hours and only help with lightweight stuff tomorrow. She's going to be staying in an apartment in Gresham part of each week so she can get around to appointments and see people without having to rely upon someone driving her from Corbett. I think this is a good idea and said I'd come out tomorrow to help her with some things.
As per usual when stuff from my childhood percolates up, I haven't wanted to see her right now. Honestly, tonight, I don't even feel much like seeing people tomorrow afternoon and evening at the events I've been urged to attend. I was honest with Mom that I didn't have a huge amount of time and that my back & hips have been hurting, so I don't want to be lifting too much. I did say, honestly, I'd come out though and help, meaning it.
She called back after a few minutes and said I shouldn't come. I felt hugely relieved and guilty all at once. She made a comment about it not being very nice that CK chose to be at the monastery the weekend before her family visits, leaving me alone to work on the house. I responded that CK had to go this weekend, it wasn't a choice she liked to make, but her taking her vows on Thursday is very important to her. I explained it calmly and honestly despite feeling very angry at her for comment in the first place.
It was right after this phone call I ate too much of the dinner I'd picked up. The combination of anger and guilt, on top of feeling lonely for CK's company, dropped me right down into feeling irritated and craving distraction. Dinner was delicious, I really enjoyed it, but I wasn't mindful of my stomach as I ate it all. I was caught up in the slurry of uncomfortable emotions and the desire to just enjoy the tasty food.
There I was, uncomfortably full and mindful of some disappointment that I really was too full to eat any cookie from the bakery. I did't try to push past that and have a bite of cookie anyway, craving the sweetness of it. I didn't get angry and I don't feel guilty for eating too large a serving, ways I would have reacted in the past. I just noticed that I was feeling too full and looked at why I had not heard my body's messages to me. What I find interesting is that the point at which I feel too full has changed a lot. Ten years ago I would have eaten the whole cookie.
Unlike the past I haven't let my Inner Critic beat me up... much. It isn't the end of the world if occasionally I eat too much. It is good to acknowledge the irritation that comes up from the way my Mom always jumps to a negative assumption and judgement. It is just fine to feel like I'm not ready to see her when I'm letting raw emotional memories settle down, even though doing so leaves me feeling like a bad daughter. It is perfectly alright that I miss CK, even when I'm happy she's practicing wholeheartedly.
Unexpected News
CK was feeling gradually worse at the Dharma Center this evening. The cough has been coming back, which is worrisome. I do feel some relief knowing she's had a chest x-ray that showed no problems. She wasn't feeling well enough to sit, fighting the coughing, and was going to bicycle home. I decided to drive us both home.
Good thing. Being home early meant I was home to get a phone call from my Mother. My cousin in the hospital, in Seattle. She had two strokes in the left, frontal area of her brain. Mom was talking fast, but I believe she said they were ischemic strokes. The first one Friday, the second probably Saturday. Her husband fought with her a couple of days before getting her to agree to let him take her to urgent care (normal behavior for her).
She also has diabetes they found out at the hospital. She has some paralysis and speech impairment. She doesn't want to see anyone yet. Her husband is distraught. So is my Mom, she is really close to MJ.
I felt the hard agate of the mala on my wrist. "Do Metta." I swear I could hear Chozen & Hogen say to me. So I did, just sitting, feeling my breath, feeling the earth in the beads on my wrist and offering loving-kindness to relieve the fear everyone is feeling right now.
I'm glad we ended up at home tonight regardless of the reason.
Waves
Today has been all waves, ups and downs.
It started with feeling tired and a headache. I jumped into communicating with someone in IT on a project that releases next month and before I knew it was past 8. I threw myself together and out the door to catch the bus.
Lunch with AM today and lots of catching up. I'm feeling sad for the relationship troubles he's just gone through, for both he and the person he was seeing. The rest of the day I spent much of trying to get something to work on a coding project only to end the day wanting to scream. Oh how my head pounded. The whine of the router in our new office area does not help.
There was a time when learning a new programming language or systems short cut was exciting, challenging and fun. More and more it isn't that way anymore, I just go straight into feeling dumb that I haven't figured it out yet. Don't know, maybe it is just some short-cut my inner critic has found to really get to me and fast.
Came home cranky and in a rush to change because I'd stayed a little too long at the office before catching the bus. I had no more than 15 minutes of "down" time before leaving again to go teach yoga. I was even just barely on time to start my class! Ugh!
And then teaching yoga does what it nearly always does. I settled down mentally and emotionally. I listened to my student's needs, touched the lineage of yoga and just taught. I felt cooled, centered, and my head felt better.
I put on some lentils to cook to make into a salad and finally faced calling my Mom. After all my stress over telling her I won't be going to the wedding she responded with an, "Oh. OK."
She said she understands how my family hurt me and why I might not want to see them yet. She also really felt like my desire not to have my relationship with CK potentially turn into "Family Drama" at a wedding was reasonable. We made plans to have a late lunch and some thrift store shopping on Sunday.
I made a great, late dinner and got the downside of the wave catching up with my friend JA-N. Her cancer pathology report was sent onto the Mayo Clinc and even they were only able to give a "best guess" as to where the cancer started. The diagnosis, endometrial cancer, suggests a chemotherapy treatment that is known to have the most side-effects. She's scared about it and I totally understand.
In between the surprising Up wave of talking to Mom and the Down wave of catching up on news from my friend there is the middle. I felt the happiness at hearing CK get home from a meeting and now watching Zonker snuggle up to her on the couch. I don't feel unsteadied by any of the news I've received today. I do feel rooted in compassion, especially towards those who are experiencing pain that leaves me feeling sad in response to their suffering.
Metta on the Up waves, on the Down waves, and in the space between the next wave starting.
Rehearsal
I'm practicing telling my Mom something she won't want to hear. Preparing myself to meet the way she'll project guilt at me and how to keep things on topic.
A second cousin of mine is getting married Saturday and Mom really wants me to go. What's left of my whole family on my Mom's side will be there. She has in her mind how she'll have this big family, all happy together.
Only the thought of going leaves me feeling anxious and angry. I've been sifting through so many unhappy parts of my childhood and I don't particularly feel like being around my cousins who quite often made me miserable as a child. I also feel very anxious about coming out to my family in this manner. I don't want to be reminded in the future how inappropriate it was for me to spring my girlfriend on them at the wedding.
Maybe that's somewhat of an excuse to give weight to the resistance I have towards seeing my whole family. I do feel anxious about revealing this about myself in this way. Not that I want to hide my relationship with CK at all, I really just feel like there is potential for drama around it and I don't want it detracting from the wedding. The idea of that happening just fuels the anxiety and anger that feels so present since I've been processing painful memories.
To make it worse -- Mom sent me some money for my birthday. She also included this incredibly sweet note about her memories of Hawaii. I hate the idea of calling to thank her and disappoint her all at once!
What I really want to do this weekend is go out there on Sunday after I get done teaching, have lunch, and go to thrift stores. It seems to be the time she and I enjoy our company the most. We have fun looking at stuff, laughing at crazy things we find, and appreciating what one another find. It is something we've been doing since I was a little kid (she had to when I was little, but it still something we had fun doing).
Tomorrow I'll give her a call and talk with her. I hope she is free on Sunday so we can just spend the day together. I feel like I'm making the right decision for myself by not going to this family event, I just hate facing my Mother's disappointment.